For Researchers

The CADASIL Community Natural History Study collects disease-specific natural history data about individuals with, or at risk for, CADASIL, with the goal of improving the understanding of CADASIL and informing treatment development. Registry questionnaires cover the following topics:

• Socio-demographics
• Medical history and diagnostics
• Treatment and disease progression
• Management of care
• Quality of life
• Participation in CADASIL clinical studies

We are interested in sharing our data with you! If you would like access to the CADASIL Community Natural History Study data for a research project, please contact our registry administrator at info@curecadasil.org for more information. Access to CADASIL Community Natural History Study data is contingent upon project approval by the CADASIL Community Natural History Study Advisory Board.