Contact Us

The CADASIL Community Natural History Study

Sponsor

CADASIL Association, Inc.; doing business as (DBA) cureCADASIL
P.O. Box 390023, Edina MN 55439
https://cureCADASIL.org

Registry Contact

Vinita Bahl
info@curecadasil.org
612.816.4552

Institutional Review Board (IRB)

North Star Review Board
learningirb.org
info@northstarreviewboard.org

Social Media & Newsletter

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org/.

Visit the National Organization for Rare Disorders home page at rarediseases.org.